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A neurofibromatosis specialist at Moffitt Cancer Center can provide the safe, effective and individualized treatment you need if you’ve been diagnosed with this complex and lifelong condition. Our Neuro-Oncology Program is home to some of the nation’s top oncologists and genetic researchers, and our patient outcomes and quality of life consistently exceed the national averages. We offer comprehensive treatment and management options for all types of neurofibromatosis, a relatively rare genetic disorder that affects the development of nerve cells and sometimes causes tumors (neurofibromas) to develop in the nervous system.

At Moffitt, our patients benefit not just from a single neurofibromatosis specialist, but from the expertise of an entire team of experts. We do not require referrals, and all of our diagnostic, treatment and supportive care services are available in a single, convenient location. Through our unique approach, each patient has the advantage of receiving several expert opinions from our neurofibromatosis specialist team in one comfortable and familiar place.

Each neurofibromatosis specialist on Moffitt’s multispecialty tumor board has highly focused skills and experience. Consider that:

  • Our neurosurgeons and surgical oncologists address nerve tumors with a high level of precision using advanced, minimally invasive surgical techniques, which also allow them to access difficult-to-reach neurofibromas that have developed near critical nerve pathways.
  • Our radiation oncologists and medical oncologists incorporate nonsurgical treatment options, such as chemotherapy and radiation therapy, into highly individualized treatment plans, as appropriate.
  • Our supportive care specialists provide a variety of services, including education, counseling and nutritional support, to help ensure the best possible quality of life for our patients both during and after treatment.

Each neurofibromatosis specialist at Moffitt is committed to treating, educating and supporting individuals who have been diagnosed with this uncommon condition. We are also making great strides in our research with a goal to one day find a cure. In acknowledgement of our progress to date, the National Cancer Institute has designated Moffitt as a Comprehensive Cancer Center, and we are the only cancer center based in Florida to have received this prestigious recognition.

If you’d like to meet with a neurofibromatosis specialist at Moffitt Cancer Center, you can call 1-888-663-3488 to schedule an appointment or complete a new patient registration form online.

Helpful Links:

  • Neuro-Oncology Leadership Team
    Peter  Forsyth, MD
    Department Chair, Neuro-Oncology

    Program

    Neuro-Oncology

    Title

    Chair, Department of Neuro-Oncology

    Specialty

    Neuro Oncology

    4.7 (128)
    Michael  Vogelbaum, MD, PhD
    Program Lead, Neuro-Oncology

    Program

    Neuro-Oncology

    Title

    Program Leader, Department of Neuro-Oncology; PRG LDR NEURO ONCOLOGY

    Specialty

    Neurosurgery

    4.8 (48)
  • Neurofibromatosis Pathologists

    Meet the pathologists who specialize in diagnosing neurofibromatosis.

    Rob  Macaulay, MD

    Program

    Pathology

    Specialty

    Pathology